Thursday, October 3, 2013

MILE 24: Ronald Buechel - Prostate Cancer

Ronald J. Buechel
April 3, 1930 - January 17, 2012

Ronald is the father of my parents' good friend, Dan.  

Here is what Dan shared about his dad:
     
     My father was a very simple man and truly wasn't the kind of person who appreciated being in the spot light.  He was diagnosed in April 2011 with prostate cancer.  He was treated with 40 radiation treatments.  Additional diagnosis was bone cancer but was far too along for treatment.

Make a donation in memory of Ronald and others we have lost, those still fighting, and those who may one day be spared this fight because of what we‘re doing. 
Give to make yourself a part of this historical effort. 

Wednesday, October 2, 2013

MILE 23: Sandy Scott - Lung Cancer

Sandy Scott
December 18, 1960 - November 26, 2005
Sandy & Jessica
Sandy is the mother of my friend, Jessica. 

Jessica shared these words about her mom:
   
     When we first realized something was wrong with my mom, we were at my cousin’s wedding shower in Madison in February 2004.  At the party, she kept bumping into walls and other objects, but the real concern was when we were driving home.  We went to merge onto the highway and she didn’t see the car next to us and almost ended up hitting it.   When we got home we figured out that her peripheral vision was going.  It took a long 5 days and many different doctor appointments including:  eye doctor, primary doctor and finally an oncologist, but by the end of the week we finally had an answer that changed our lives forever.  
     We found out that my mom was diagnosed with lung cancer that metastasized to her brain and lymph nodes.  My mom had a cough for several months prior to losing her peripheral vision, but we thought nothing of it until she started losing her vision.  At that time, my mom was diagnosed at a stage 4 with 3 months to live (as I found out after my mom passed).  She fought hard having many treatments of chemotherapy and radiation, tried gamma-knife radiation, and MANY medications, but it finally took over 1 year and 9 months later.  She passed away on November 26, 2005.  
     The entire experience was life changing and completely new and expected for a teenager.  I tried to take everything in stride and help my mom out as much as I could because I had no idea how much time we had together.  Don’t get me wrong, I cried many nights thinking that my mom won’t be their when I graduate college, be by my side at my wedding, or give me the advice as I have my own children, but I knew I had to be her rock through all those tough times.  Since my mom has passed, my life has taken my turns and gone up and down my hills.  I have had times of great depression and sorrow, and times of great joy, but I can certainly say my mom has had a huge influence on who I am and who I want to be as I grow.  I know she is always with me and will guide me through my future journeys. 

Jessica chose Mile 23 for her mom, because:  "although you may 'hit the wall,' keep striding and pushing yourself to the finish (even though your mind may play tricks on you.) Nothing can stop you from pursuing your dream of finishing a marathon and helping many in the process - just like I will never stop pursuing my dreams after my mom passed away.  Just remember, you are going to have good and bad days of training and miles throughout the marathon, but each day/mile is a blessing, so use all of those inspiring individuals to push you through. God bless and good luck!"

Make a donation in memory of Sandy and others we have lost, those still fighting, and those who may one day be spared this fight because of what we‘re doing. 
Give to make yourself a part of this historical effort. 

Tuesday, October 1, 2013

MILE 22: Grandpa Steffes - Bladder Cancer

David Steffes
December 31, 1934 - January 22, 2006


David's story, as told by his wife and my Grandma, Marjorie Steffes:   
     
     His cancer started with pain in the lower groin area, frequent trips to the bathroom, and bladder infections.  He was tested for prostate problems, but instead they discovered a tumor in the bladder.  He started chemo treatments and had many rounds with the hope that it would shrink the tumor.  It didn't work, and on December 19, 2004, they removed his bladder.  He had a small urine reservoir surgically created that allowed him to drain the collected urine.  However, this did not stop him from working part-time or golfing.
     Things were okay for awhile, but then problems with the colon started.  After many tests, it was determined that the tumor had invaded the colon and he underwent more chemo treatments.  Again, the hope was that the tumor would shrink.  And again, it didn't.  On August 31, his colon was also removed.  He then had two ostomies - one for his urine and one for his stool.  Things were not easy, but he was very receptive and we were very hopeful.  
     Sadly, the problems only continued.  A doctor discovered that his carotid artery was almost entirely blocked, but he would not operate out of fear of an immediate stroke.  He wanted David to finish his remaining 2 or 3 cancer treatments before they would stent the artery.  Unfortunately, he never got to finish those chemo treatments because while at home, he suffered a stroke and was taken to Calumet Medical by ambulance.  After several days he transferred to Holy Family in Manitowoc for more intense treatments.  He could not speak or eat on his own.  While there, he had a heart attack and was transferred into the Intensive Care Unit.  Family stayed by his side until on January 22, 2006, he passed away.  His ultimate cause of death was sepsis, an infection that invaded his entire body and took advantage of his immunocompromised state.  
     We enjoyed 31 years of married life.  He was a great husband and step-father to my four children, who were all teenagers at the time of our marriage.  
     We must always be grateful for each day in our lives.  

My Grandpa passed away on January 22, so he will represent Mile 22

Make a donation in memory of David and others we have lost, those still fighting, and those who may one day be spared this fight because of what we‘re doing. 
Give to make yourself a part of this historical effort. 

Monday, September 30, 2013

RACE DETAILS!

Marathon Information 
Race Details
The race starts at 7:30 am at Grafton High School. It ends at Veteran's Park in Milwaukee.
      - To view a simple map of the entire race route, click here

      - If you prefer to see a detailed course map, click here.

The Milwaukee Lakefront Marathon has provided a Spectator's Guide! If you have a question...it has the answer.
Runners LOVE spectators and are very appreciate that you dragged your butt out of bed at the crack of dawn in order to show your support. Signs and crazy outfits are highly encouraged - but really, just being there is special enough. Don't be shy when I run by!  Make your presence known.  I suggest you bring chairs or blankets, snacks, and a thermos of coffee. Heck, I will be running for at least four hours, so you could even grab breakfast in-between seeing me at the start of the race and the finish. :)

As for where to watch the marathon...
I e-mailed the race director, Jon Mueller, and told him about my my mission in running the marathon and hope in having a spectator represent someone with cancer at each mile. I asked, "Tell me - is that feasible? If so - HOW is that accomplished? If not - what are the best spots to view the runners?"

This was the response I received:
"While I admire your charitable efforts, it is not possible to have a spectator at each mile mark. Many sections of our course are not accessible to spectators at the request of the individual communities that we run through. At least three of the communities:  Mequon, Bayside, and Fox Point, will not allow spectator parking at all along the course. My best advice is to study the information on the website, plan ahead for the best spots on the course that will serve the varying needs of the spectators who are coming to see you and then allow enough time for them to get to the finish to see you cross."

Given this information, please do not worry about being at the designated mile of your loved one. I do not want people to stress over parking or driving in Milwaukee. Instead, choose a spectator spot of your convenience and enjoy the experience. There are many maps available for your viewing and planning. They include:
      - Finish Area Spectator and Runner Parking Map
      - Detailed Finish Area Map
      - Downtown Map with Directions
      - Finish Area with Directions

I plan on running between a 10 and 11 minute mile.  Meaning, if you are waiting near mile 6, you can expect me to run past between 8:30 and 8:40. You can track me through Email or Facebook. Click the links to get instructions on how to sign-up. Updates will only be posted when I cross miles 7, 13.1, 20, and the finish. Therefore, I suggest being in contact with other spectators coming to cheer me on in order to keep a close track of where I am throughout the race route.  If you are my Facebook friend - post to my wall when and where you see me!  If you are not my Facebook friend, add me :)  If you already have your spectator spot chosen, please leave a comment as to where you will be.  Ideally, I would like to have my spectators spread out along the race route and leaving a comment will help others plan accordingly.

...and then, we CELEBRATE!
I would really love to see you ALL at the finish line.  Your stories, your donations, and your support turned my dream into a reality.  Together we have increased cancer awareness and raised money to find a cure for cancer.  After the marathon, let's celebrate our accomplishments!  Join me at Water Street Brewery in Grafton to sit, relax, watch the Packer game, and enjoy some food and beverages.  

MILE 21: Ellen Berenz - Breast Cancer

Ellen Berenz
July 21, 1925 - April 1962

Ellen is the mother of my aunt and Godmother, Judy.

This is Ellen's story, told by Judy:
     
     My mother, Ellen Vorpahl Berenz, died of breast cancer in April of 1962.  I was 8 years old and don’t know many details. In 1961, she first saw symptoms when she was breastfeeding and was treated for clogged milk duct.  Later, it was diagnosed as breast cancer.  She had both breasts removed and then radiation every day.  I don’t know how long she had radiation, but I know she went to Dr. Tasch in Sheboygan.  I remember her sleeping in a hospital bed in our dining room.  I also remember the morning my grandmother woke us up and told us we didn’t have to go to school.  My dad sat all four of us kids down and told us Mom had gone to heaven.  
     Times were hard and I remember my dad going bankrupt.  We lost everything in our duplex and he had to start over.  Thankfully, relatives bought back some of the furniture and appliances. 
     Times have changed.  There is so much more knowledge about cancer now.  New treatments and natural remedies.  I pray for the day that there is a cure!  

Judy added, "Good luck and God bless!!"   

Ellen will represent Mile 21 for her birthday, July 21st. 

Make a donation in memory of Ellen and others we have lost, those still fighting, and those who may one day be spared this fight because of what we‘re doing. 
Give to make yourself a part of this historical effort. 

Sunday, September 29, 2013

MILE 20: Grandpa Petrie - Non-Hodgkin's Lymphoma

Lloyd Petrie
January 19, 1935 - November 26, 2012

Lloyd's story, in the words of his wife and my Grandma, Betty Petrie:
    
     Grandpa was having back problems so we went to the neurosurgeon who did his back surgeries.  He took a MRI (magnetic resonance imaging) and said he saw spots on the scans so we should go to an oncologist.  The oncologist took a CT (computed tomography) scan and PET (positron emission tomography) scan and on August 8, 2012, he told us Grandpa had lymph node cancer.  He told us it was the easiest to treat and had the highest success rate.  
     Grandpa started chemo treatments and had them every six weeks.  At the third treatment, his blood pressure was too low and they couldn't finish the treatment.  He was also very weak.  The oncologist said the cancer was in check and he should just work on getting stronger and come back for a maintenance treatment on December 20, 2012. 
     Despite his strong will, he kept getting weaker and starting having a hard time swallowing. He hardly ate anything, but he drank Ensure at least three times a day and walked as much as possible to get his strength back.
     Then the doctor decided his esophagus needed to be stretched and that was why he couldn't eat.  We took him to the hospital on a Monday for that procedure.  It was supposed to be done out-patient, but we asked if he could be admitted to the hospital to get an IV and help him get stronger.  He was admitted, and more tests were done and it was determined that the cancer had taken over his whole body.  A decision had to be made whether to take him home or move him to hospice, but Grandpa made up his own mind and decided it was time.  One week from the day he was admitted, our Lord took him home! 
     
My Grandma added, "If all our love helps you get to the finish line, you'll finish easily cause we love you lots!" 

Grandpa will represent Mile 20 in honor of my grandparent's anniversary, October 20.

Saturday, September 28, 2013

Mile 19: Vicki Adsit - Breast Cancer

Vicki Adsit

Vicki is my friend and coworker.  

This is Vicki's story, in her own words:

     In September of 2011, I found a lump in my left breast.  Seeing as how I had inflicted some trauma to the area in the weeks prior, (an elbow to the breast while playing volleyball followed by a bike handle-bar jab), I thought that this possibly could be some sort of contusion.  I waited a week or so and reevaluated...along with the umteen million other times I checked it out...no change....ugh!  I came home from work one morning, rechecked, and the light came on, it was then that I knew...I knew I had breast cancer.  I called my PMD, asked if I could come in right away as I needed a mammogram because I most likely had breast cancer. They thought I was nuts, but thankfully did get me in right away...and that is when all of the diagnostics began... 
     I started with a mammogram.  The radiologist showed me the films and there were actually two sites that had abnormal tissue.  To confirm what these growths were, I underwent a needle biopsy to the sites on September 14th, 2011.  During the biopsies, the radiologist had mentioned that the growths were "acting like cysts".  For some reason, I knew otherwise...I just had that gut feeling that I had cancer.  The following day, on September 15th, 2011, the radiologist apologetically called to inform me that I had ductal carcinoma.  He was very kind and offered some very positive words of encouragement to me.  Then, all of the phone calls started coming in...
     The following two weeks were filled with meeting doctors, blood work, port placement and a PET scan.  My scan, of course, showed the two sites in my left breast, but another area "glowed" as well.  I could see it the technician’s face that something else showed up.  I spent the next gut-wrenching days waiting for the results.  I received a call from my oncologist and he explained to me that my ovaries were also slightly "glowing"; however, he said this may be attributed to my young age, and because of that, we were going to forge on with treatment as planned.  My doctor had also recommended that I undergo genetic testing which would not only influence my treatment, but also provide information for my family members as well.  I tested positive for the BRCA 1 genetic mutation, along with my mom and cousin.
     So...a medical oncologist, breast surgeon, plastic surgeon and gynecological oncologist later, I, with the support of these wonderful doctors and nurses, was ready to start treatment.  Given the type of cancer, ER+ (slightly), PR -, Her2 Neu -, my age and previously healthy state, we were going to be aggressive.  Thankfully, there was no lymph node involvement!  It was decided that I would have chemo first, undergo a bilateral mastectomy, and then potentially radiation.  He wanted to start me with chemo so that he could assess the effectiveness of the drugs on tumor shrinkage. 
     On October 5th, 2011, I started by first cycle of what would be a total of four every two weeks of adriamycin and cytoxan.  My cousin came with me to every infusion...I sort of believe we provided some comic relief to many of the other patients...we made many friends!!  After the second cycle, my oncologist could no longer feel one of the two tumors.  The next toxic gun was Taxol.  I received one round of this and my doctor wasn't satisfied with the results on my stubborn, larger tumor so he added more.  I received taxol and carboplatin every three weeks for five more cycles.  We saw some shrinkage of the tumor but it was clearly still there.  Next step, mastectomy and hysterectomy...
     But, before the surgeries, I had a repeat PET scan.  The results of this scan were much better than the first.  Although the stubborn tumor was still there, as I knew it would be, the second tumor was completely gone and my ovaries were no longer "glowing".  Yay! 
     On April 24th, 2012 I had a complete hysterectomy.  My GYN oncologist used the DiVinci robot for this surgery, leaving me with smaller laparoscopic scars instead of one larger scar and a quicker healing time.  I decided to have the hysterectomy due to my BRCA 1 status.  People with this gene mutation have an 87% chance of getting breast cancer and an almost 50% chance of getting ovarian cancer.  I was also at a slighter risk for uterine cancer as well, therefore, I had it all removed.   My mom had ovarian cancer when she was in her 40's, it was a very scary time for us,  so I certainly wanted to eliminate this risk.  As I said before, my mom and cousin are both BRCA 1 positive...with this information, they both underwent prophylactic mastectomies.  Thankfully so, because my mom had ductal carcinoma in situ in two sites in her left breast (stage 0/pre-cancer).   No further treatment was necessary for her :)
     On May 2nd, 2012, I underwent a bilateral mastectomy with immediate reconstruction (expanders) and sentinel node biopsy (wow, did the dye injections hurt!).  The surgery went well.  The tumor was "abutted" to my pectoral muscle so they did have to shave off a little of my muscle for a cleaner border.  My lymph nodes remained negative which was awesome news.
     Then, at the end of June I began radiation.  Although my borders were all negative, my oncologist wanted me to do so because of the close proximity of the tumor to my pectoral muscle.  I went five days a week for six weeks.  I was also finally able to come back to work at this time...it seemed like forever.  I was so happy to come back, but it was also strange for me to flip back to the other side of things...to go back to nursing rather than being the patient, after all, that was all I knew for 8 months.  I learned a lot about myself and my strength and determination during those eight months...I guess I am a pretty tough cookie :)   
     I am currently just a year past my last day of treatment...I can't believe it!!  I will continue to take tamoxifen for at least 5 years, I can certainly handle that.  And now, I have graduated from every three month doctor visits to every six.  I value and love life and appreciate every single day...

Vicki chose Mile 19 in honor of her grandma, whose birthday is January 19.   She wrote, "I sadly lost my grandma, my best friend, two days after my first round of chemo.  She is now my angel that watches over me and protects me....there isn't a day that goes by that I don't think of her and miss her!"

Make a donation in honor of Vicki and others still fighting, those we have lost, and those who may one day be spared this fight because of what we‘re doing. 
Give to make yourself a part of this historical effort.